Clayton

Sorry its been so long sence i'v updated this. been realy busy. Clayton is doing good. he no longer has a tube in his throught for breathing and he is eating. Well more like being fed through a tube but it is real food going in and he is starting to take a bottle a little. We still dont know how long it will be before he gets to come home.

Clayton

Clayton

Well Clayton is not progresing like we would hope. The Docs are moving him in to the Nicu now they say that is a more long term stay kind of place. They now think that he may have a problem with the muscle that releaces things from his stomach. If he does that will be another surgery. Thats all we know for now.

Justin

Yes Justin is still Cute. He came to visit Clayton in the hospital on thursdayMostly he just likes to play in the waiting room.

New Clayton news and pics.

Sorry it's been so long sence I'v updated this. This is Clayton as of last week. Tomarrow he is going in for his fourth surgery. He had to have a third to put in a new line for his meds and for nutrition. it had to be surgicaly placed in his leg runing up to his hart. tomarrow the docs are going in to stich his diaphram down so he can breath. as of now it is not leting his one lung fill up with air. He will not be coming home for Christmas. At this point the docs are hoping that he will be able to be out of the PICU and into a normal room of his own by Christmas. Keep praying for him and we will keep you posted.

Clay boys colostomy

Clayton went in for surgery on Monday instead of Wednesday. The surgeon had an opening and was able to get him in right then. All went well. Clayton now has a bag hanging on his belly that allows him to have bauel movements. The docs think that they will have his breathing tube out today or tomorrow. They also think that he will be able to eat by Thursday or Friday. This sounds good to us. We are hoping that this means it will only be a fiew weeks before he can come home. (wish-full thinking) HE is looking good as far as his physical features go. The Chromosome test came back and all is normal that way as far as they can tell. So life goes on, we get bad news and good news and we just take it all in stride.

Surgery

Sorry it has taken me so long to update this blog. Clayton's surgery went well. he is now recovering and is looking a lot better. Sorry no new pics. Stacy is staying down there with him during the week then coming home to be with Justin and I. I will be back down there for his next surgery witch should be next Wed or Thurs. That one is for his large intestine. They will be putting a bag on his side for it to dump into, until a later date. As of today he is doing well, they have removed all but one I V, they have removed two of the drainage lines that were in his chest cavity and they have reduced the amount of air they are giving him. He is breathing on his own more than the breathes of air they are giving him witch is a good thing. Oh they also took out the catheter that they had in to measure his urine.