Clayton

Well Clayton is not progresing like we would hope. The Docs are moving him in to the Nicu now they say that is a more long term stay kind of place. They now think that he may have a problem with the muscle that releaces things from his stomach. If he does that will be another surgery. Thats all we know for now.

Justin

Yes Justin is still Cute. He came to visit Clayton in the hospital on thursdayMostly he just likes to play in the waiting room.

New Clayton news and pics.

Sorry it's been so long sence I'v updated this. This is Clayton as of last week. Tomarrow he is going in for his fourth surgery. He had to have a third to put in a new line for his meds and for nutrition. it had to be surgicaly placed in his leg runing up to his hart. tomarrow the docs are going in to stich his diaphram down so he can breath. as of now it is not leting his one lung fill up with air. He will not be coming home for Christmas. At this point the docs are hoping that he will be able to be out of the PICU and into a normal room of his own by Christmas. Keep praying for him and we will keep you posted.

Clay boys colostomy

Clayton went in for surgery on Monday instead of Wednesday. The surgeon had an opening and was able to get him in right then. All went well. Clayton now has a bag hanging on his belly that allows him to have bauel movements. The docs think that they will have his breathing tube out today or tomorrow. They also think that he will be able to eat by Thursday or Friday. This sounds good to us. We are hoping that this means it will only be a fiew weeks before he can come home. (wish-full thinking) HE is looking good as far as his physical features go. The Chromosome test came back and all is normal that way as far as they can tell. So life goes on, we get bad news and good news and we just take it all in stride.